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GETTING INFORMATION ABOUT THE TRANSPORTATION CENTERS

There are sections called so-called transplant centers in hospitals experienced in transplanting bone marrow or cord blood. Not every hospital does a transplant. You may need to travel somewhere else to get a transplant.


Some centers may specialize in a particular patient or disease type. Your doctor may recommend a private transplant center. Your insurance company may have rules about which centers are covered by the policy.


Understanding the process of identifying a matching donor or cord blood unit


It is important that your doctor starts looking for a donor or cord blood unit as soon as you find out that transplant may be a treatment option. The results of patients who are transplanted in the early stages of the disease are better than those in the advanced stages. Your doctor may start looking for a donor or cord blood unit while you are still evaluating other treatments.


Finding a match can take several weeks for the cord blood unit, while it may take several months or more for the donor.


Step 1. Your doctor offers preliminary research


You may have received this booklet because your doctor has offered preliminary research. Preliminary research is free and is a look at how many possible matches can be for you in the 'Become a compatible donor' record.


Step 2. Your doctor will evaluate the preliminary research results. The research report shows the number of donor and cord blood units that are likely to be closely matched to you in the records. Preliminary research does not involve contacting donors or taking other tests.


Understanding nurses function


Step 3. If you are not already in a transplant center, your doctor will refer you to a transplant center associated with UKIP. The next step is to start the official investigation only in the hospital, which is said to be an experienced transplant center in allogenic transplant practice. To help which transplant center is most suitable for you, you and your doctor can refer to UKIDP resources, and examine the "Patient Guide, Selecting a Transplant Center" leaflet, available on the internet at "marrow.org/access".


Step 4. Your transplant center starts the official investigation.


In an official investigation, records are scanned every day to see the latest additions. Possible compatible cord bloods are ordered for additional tests or contacted with donors. A formal investigation requires payment. Your insurance company may or may not pay this fee. If you have questions about insurance coverage, UKIDP's Patient Rights Bureau can help.


Step 5. A donor or cord blood unit is selected.


Your doctor at the transplant center can choose either an adult volunteer donor or a previously donated and frozen frozen cord blood unit to transmit to you as a blood-forming cell source. If an adult donor is selected, that person is contacted by the donor center staff and trained on the collection process. All communications are managed by UKIP to protect the privacy of the patient and donor. During your treatment, there will be no direct connection between you and the donor or your doctor and donor. The donor center will coordinate your doctor's bone marrow or CCHC donation request. If a matched cord blood unit has been selected, UKIDP will regulate the delivery of the cord blood to your transplant center.


Diseases that can be treated with bone marrow and cord blood transplantation include:


Leukemia and lymphomas:


• Acute myelogenic leukemia


Acute lymphoblastic leukemia


• Chronic myelogenic leukemia


Chronic lymphocytic leukemia


• Juvenile myelomonocytic leukemi


Hodgkin lymphoma


Non Hodgkin lymphoma


Multiple myeloma and plasma cell disorders Severe aplastic anemia and other bone marrow failure conditions:


Severe aplastic anemia


Fanconi anemia


• Paroxysmal nocturnal hemoglobinuria (PNH)


Pure erythrocyte aplasia


Amegakaryocytosis / congenital thrombocytopenia


CKY and other genetic immune system disorders:


 


• Severe combined immune deficiency (CKY and all its sub-tubes)


Wiskott Aldrich syndrome


Hemoglobiopati are:


• Beta thalassemia major


Sickle cell disease


Hurler Syndrome and other genetic metabolic disorders


• Hurler Syndrome (MPS-IH)


• Adrenoleukodystroph


 


• Metachromatic leukodystrophy


Myelodysplastic and myeloproliferative disorders:


• Refractory anemia (All tubes)


Chronic myelomonocytic leukemia


• Agnogenic myeloid metaplasia (myelofibrosis) Familial erythrophagocytic lymphohistiocytosis and other histiocytic disordersIt is a good idea to see a Transplant doctor (for consultation) right after the diagnosis. The transplant doctor can work with your doctor to evaluate the best time for a possible transplant.


Your illness and general health are important factors. Many diseases change over time. (For example, leukemia may go from the chronic phase to the young cell crisis or enter the post-treatment remission period.) In some of these disease stages, bone marrow or cord blood transplantation may be a good treatment option. Other treatments may be a better option at other times.


Your doctor will evaluate your individual risk factors. Your first treatment may not be transplanted, but you should research all your treatment options and plan ahead.


 


Organizing a transplant will take a long time, so it is a good idea for your doctor to start the process even while you are evaluating other treatment options. 


The National Bone Marrow Donor Program, along with the American Blood and Bone Marrow Transplant Association, publishes “Recommended Timing for Transplantation Consultation (Consultation)” guidelines. Your doctor can find these guides at marrow.org/md-guidelines.


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